Blog live in the middle of nowhere

Living in the middle of nowhere with multiple sclerosis

I am making a foreword to this blog by admitting that, as they say here, I live in the afterlife. I am on the edge of a continent where mountains meet the sea and winds, which are refreshed at the onset of winter, are washed by nothing but waves from thousands of kilometers. In other words, I live on the edge of nowhere.

Caryn met today in a small town in the middle of our island. Shortly after a couple of (very) busy weeks, I decided to accompany her on the trip for a short break. My schedule had caught up with me for the past few days - sorry I didn't blog on Tuesday - and I thought the drive and a change of perspective might be nice.

It was nice, but the hours by car and the miles between the small villages and towns made me think about living in a place like this - a place like this with multiple sclerosis (MS).

Alone with MS

I know that in many parts of the world, living with MS is something that people practically do on their own, whether they live in a farmhouse or a high-rise apartment. That was not my experience as I have only lived in countries with active MS societies and my MS work almost exclusively takes me to these countries. But there are places in Ireland, Britain, Canada and the United States where people are far removed from the larger MS community.

It may take miles of car trips or even flying hours to see an MS specialist. Physiotherapists, occupational therapists, ophthalmologists, and other health professionals with knowledge of MS may not be in close proximity.

The closest self-help or meet-up group for people with MS, let alone a specialized group for men, new mothers, LGBT or other subgroups in the MS world, may not be an option. The best peer support some people might find is phone support through a program like MSFriends.

Live where you love

There are certainly benefits to living in a place that you love. Be it the country, the coast, or a busy city, when we are happy and content it can go a long way towards creating a better life. However, when we are far from the medical services we need, life where we want to live can become more difficult.

Some of us have little or no choice as to where to pitch our tent and get on as best we can. Others have moved their homes to live closer to MS services or to pursue their dreams while they still can.

Regardless, MS is a part of our lives and we do our best to make it as small as possible.

Where do you live

I would like to hear from those who are far from an MS community, those who are closer to a community, those who find their community online, and those who feel they don't have a support network to have.

We all have a story to tell about "where" we live with MS, both physically and socially. Please share yours in the comments.

I wish you and your family all the best in your health.



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Credit: Michael Hanson / Getty Images